By Catherine Shaw It is with great sadness that we are bidding farewell, to one of our valued board members, Louise Valsinger. Louise joined the… Read More »‘See you Later’ Louise

By Lin Edwards Research gives us hope for a better future for our loved ones with PWS. But research is expensive. Most people have heard… Read More »Why we need your help

I’m Catherine Shaw, Co-founder and Chair person of FPWR UK. I just thought I would introduce myself and share my story. I am a Mum… Read More »Catherine’s Story

This month our Board held a planning meeting to work out what we wanted to achieve for the forthcoming year. The past couple of years… Read More »Our Goals for 2022

By David Jack With New Year rapidly approaching now is a good opportunity to reflect on 2021 and where we are on our journey to… Read More »A look back over progress in 2021

By Lin Edwards Covid has affected our lives for almost 2 years now – and fundraising has been badly affected. 2020 would have been our… Read More »Fundraising in 2021 – A Challenging Year