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“Research gives my daughter her best hope for a happy and independent future. “

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Get even more awesome FPWR UK content!

Sign up for our mailing list and make sure you never miss out on any of our news, updates or announcements again!

We currently have one regular mailout – PeeWee’s Post – with the second one – Fabulous Fundraising – launching this year. You can read about each below!

PeeWee’s Post

Peewee’s Post is the name of our e-newsletter. It is jam-packed full of interesting news, stories and information that are sure to impress and intrigue you! PeeWee’s Post is delivered to your inbox a few times a year.

Inside PeeWee’s Post:

  • current treatment trials and studies – latest news and updates
  • celebrating our fabulous FPWR UK fundraisers
  • upcoming events, both virtual and in person
  • opportunities to take part in research and surveys
  • how to volunteer or fundraise for FPWR UK
  • where FPWR UK send their funding
  • and much more!!

Fabulous Fundraising

Fabulous Fundraising is geared towards those who are interested in running, or being otherwise involved with, fundraising events. These may be events run by FPWR UK itself, or may be events run by families for the benefit of the charity.

It can be daunting to consider running a fundraising event. Big event or small one? Sponsored activity or something else? Who do you need to speak to? What paperwork is needed? How do you do a risk assessment?

We recognise how difficult these things can be, and that they can put many people off. We hope that we can ease the way somewhat by walking you through some of the necessary steps, and by encouraging groups of local families to work together so that they can play to their strengths and no one is alone.

How do I sign up?

To receive future copies of PeeWee’s Post or Fabulous Fundraising, simply click the button to go to our sign up form. You will be asked to confirm your subscription and then you can relax, knowing the next editions of these mailings will be winging their way to your inbox as soon as they are ready!

A note about GDPR

We abide by GDPR and will not use your email address for anything other than the contact outlined above.