We know that many families across our community are feeling frustrated, disappointed, and even angry following the recent news regarding Vykat XR and the withdrawal of the European application … Read More »Update on Vykat XR and what this means for the PWS community
Make a Difference in Minutes: Fundraise for FPWR UK Through Facebook & Instagram Supporting Prader-Willi syndrome (PWS) research has never been easier. Facebook and Instagram… Read More »Social Media Fundraising
What if we could zoom inside our DNA and see how tiny genetic changes shape the way the brain develops and functions? That’s exactly what Dr… Read More »Mapping the Secrets of Chromosome 15
A new preprint suggests that some of the earliest signs of Prader–Willi syndrome (PWS) may actually begin before a baby is born — not just in the brain… Read More »New Research Focuses on Prader–Willi Syndrome Signs Before Birth
Soleno Therapeutics have released the results of the Randomised Withdrawal Trial stage of their DCCR clinical programme. These findings, now published in the Journal of Clinical Endocrinology and… Read More »VYKAT XR/DCCR Withdrawal Trial Results Published
The Biggest Year Yet for FPWR UK and PWS Research As we close the chapter on 2025, I find myself reflecting on what an extraordinary… Read More »2025 – a message from our Chairperson