Schaaf Yang Syndrome
What is Schaaf-Yang Syndrome?Schaaf-Yang Syndrome (or SYS) was first described by Dr Christian Schaaf in 2013. It is caused by a mutation or deletion in… Read More »Schaaf Yang Syndrome
Volunteers wanted!
FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi Syndrome (PWS) through the advancement of research and… Read More »Volunteers wanted!
PWS Stronger Together have been informed of a new research opportunity!!
MindSight Research are looking to invite people to participate in a research study which is focused on an injection device to administer medication to people… Read More »PWS Stronger Together have been informed of a new research opportunity!!
MOVE IT MAY SUCCESS!!
This year, FPWR UK and PWSA UK (Prader Willi Syndrome Association) decided upon a one of a kind challenge for PWS Awareness Month! We have… Read More »MOVE IT MAY SUCCESS!!
LAUNCHING OUR NEW FPWR UK ONLINE SHOP!
Just in time for Awareness month! We have officially launched our FPWR UK Online shop! This page here is to detail out a few T&C… Read More »LAUNCHING OUR NEW FPWR UK ONLINE SHOP!
Dancing for PWS Research
In this guest blog our Volunteer Evelyn explains the planning process behind her second successful Ceilidh. The Ceilidh was a huge success, and we are… Read More »Dancing for PWS Research