What if we could zoom inside our DNA and see how tiny genetic changes shape the way the brain develops and functions? That’s exactly what Dr… Read More »Mapping the Secrets of Chromosome 15

A new preprint suggests that some of the earliest signs of Prader–Willi syndrome (PWS) may actually begin before a baby is born — not just in the brain… Read More »New Research Focuses on Prader–Willi Syndrome Signs Before Birth 

Soleno Therapeutics have released the results of the Randomised Withdrawal Trial stage of their DCCR clinical programme. These findings, now published in the Journal of Clinical Endocrinology and… Read More »VYKAT XR/DCCR Withdrawal Trial Results Published 

The Biggest Year Yet for FPWR UK and PWS Research As we close the chapter on 2025, I find myself reflecting on what an extraordinary… Read More »2025 – a message from our Chairperson

Rhythm Pharmaceuticals has shared early results from a Phase 2 study of a drug called setmelanotide in people with Prader-Willi syndrome (PWS). This is an exciting development because it… Read More »Rhythm Pharmaceuticals announce promising early data on their trial of Setmelanotide 

For families living with Prader-Willi syndrome (PWS), the relentless drive to eat is a well-known and daily struggle. A key area of PWS research is… Read More »Boosting Brain Signals to Help Regulate Appetite in PWS