New research from Australia has demonstrated that genes silenced in Prader-Willi syndrome can be switched back on, opening an exciting potential avenue for treating the… Read More »A New Breakthrough in Prader-Willi Syndrome Research (PWS): Could Gene Reactivation Offer Hope for All Ages?

One of the biggest challenges for people living with Prader-Willi syndrome (PWS) is hyperphagia, the overwhelming drive to eat. For many years, researchers believed this… Read More »Research Explained: Why Doesn’t the Brain Recognise the “I’m Full” Signal in Prader-Willi Syndrome? 

Research into new treatments for Prader-Willi syndrome (PWS) continues to move forward, with Palobiofarma recently announcing encouraging results from a Phase 2 clinical trial of… Read More »Research Update: Encouraging Results for PBF-999 in PWS

We’ve recently seen questions and concerns on social media about the status of VYKAT® XR (diazoxide choline, previously known as DCCR) in Europe. We wanted… Read More »Understanding the Current Status of VYKAT® XR in Europe 

As PWS Awareness Month draws to a close, we want to take a moment to say an enormous thank you to everyone who helped make… Read More »PWS Awareness Month 2025: A Huge Thank You for an Incredible Month!

We’re shining the spotlight on our incredible volunteer, Clare Black, whose dedication over the past two years has helped raise vital funds for Prader-Willi Syndrome… Read More »Yeehaw for Research!