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“We are incredibly lucky that there are people out there who are working for a brighter future for us and so many other families like ours”

Meet the Team

Our dedicated UK team consists of the Board and our Administration and Marketing Assistant. We are always interested to hear from enthusiastic volunteers, so if you feel like you could help us, please don’t hesitate to get in touch.

The Board

The FPWR UK Board is made up of individuals committed to our mission aims. Click on the names below for information about each of our Board members.

Catherine Shaw

Catherine Shaw is a mum of 3 children, Eleanor, born in 2009 with PWS and her two younger siblings, Freddie, and Annie. Catherine is also the Founder of FPWR UK. She is a stay at home mum who home schools her two younger children. Catherine’s background is in special educational needs, working in the tribunal sector for benefits and as a team leader in the civil service, all of which helped prepare her for the role of Chair of FPWR UK

Angela Saunders

Angie is a mum to Emilie and Zoe (who has PWS) and joined the Board in 2023. Angie has a background in Law and Education and now is a stay at home mum/carer. She joined FPWR UK as she has a strong passion for research and sees this as the key to a better future for everyone with PWS, both in terms of treatments, therapies and understanding. Angie is keen to support with fundraising and raising awareness of PWS through events, communications and social media.

Angela with Emilie and Zoe!
David Jack

David joined the board in 2021 and lives in the Scottish Highlands. He is father to two children; Robyn, born in 2018 who has PWS and her younger sister Morven. David’s professional background is in Human Resources where he has worked across a number of sectors at a senior level. He currently lectures with the Highland and Islands University and runs his own Human Resources and Training Consultancy.

David and Robyn

The Team

Caz Merritt

Caz runs our stores and her role is to help manage our stock which includes essential jobs such as distributing fund raising packs. As well as working with FPWR UK, Caz runs her own Doula business where she provides bespoke support to women during pregnancy and childbirth. Caz is new to the PWS community but her brother has Down’s Syndrome which has given her a good understanding of disabilities.

Shannon Cohead

Shannon is our administrator who’s role is to keep the social media and website up to date with news of the charity and forthcoming research as well as other admin jobs that are required to help the charity run efficiently. Shannon has a son, Tommy who has PWS so has developed a passion for helping him and others impacted by the condition.

Shannon and Tommy

Our Volunteers

Danica Matheson

Danica joined the team in 2023, she is our Treasurer whose role is to maintain the accounts and manage invoices. She has a niece with PWS which has taught her a lot about the condition and is her drive to support the foundation and raise awareness in any way she can. Danica is based in the south east of England and enjoys socialising, dancing and anything creative.

Evelyn Close

Evelyn is one of our valued volunteers, she helps in all areas of the charity, especially in up and coming research, here is a note from her: “I live in Ayrshire with my husband Michael and our 2 year old daughter who has PWS, Harriet. We are surrounded by friends and family who all support us and Harriet wholeheartedly. We are love to get outdoors and our favourite sport is wakeboarding which Harriet has been enjoying coming to since she was 8 weeks old.”

Evelyn and Harriet