Families of children and adults with Prader-Willi Syndrome (PWS) know that challenges extend far beyond food-related behaviours. Many individuals with PWS also experience aggression, hyperactivity,… Read More »GXR trial shows promising results

We’re thrilled to announce that FPWR UK is fully funding a groundbreaking research project in 2025 led by European researcher Dr. Hervé Moine.  Dr Moine… Read More »DGKk

Sleep is essential for energy, focus, and overall well-being, but for individuals with Prader-Willi Syndrome (PWS), sleep can be a major challenge. Many people with… Read More »Unlocking Better Sleep for People with PWS

Scientists believe that in Prader-Willi Syndrome (PWS), one part of the brain — the hypothalamus — doesn’t work quite as it should. This tiny but… Read More »Building a Brain in a Dish: How Scientists Are Exploring the Root of PWS Symptoms

To better understand how Prader-Willi Syndrome (PWS) affects mood, health, and happiness, over 500 parents from the Global PWS Registry participated in a special study.… Read More »How do Individuals with PWS view their Health and Happiness? A new report highlights urgent need for better care and more treatments 

As PWS Awareness Month draws to a close, we want to take a moment to say an enormous thank you to everyone who helped make… Read More »PWS Awareness Month 2025: A Huge Thank You for an Incredible Month!