The recent International Prader Willi Syndrome Organisation (IPWSO) research presentation was a very positive experience. For those that were unable to attend or have yet… Read More »International Prader Willi Syndrome Organisation (IPWSO) Research Update

In our first FPWR UK Full Story submission we have Isaac’s mum Emma discussing their journey with the different behaviour symptoms PWS can throw at you, strategies they… Read More »Our FPWR UK Full Story – Entry 1

I’m pleased to say we completed our expedition to canoe the Sheenjek river on 23rd July which in the end took 13 days, during 12… Read More »Completed Alaskan Canoe Expedition and funds raised for PWS Research

Would you like to receive FPWR UK news and events straight to your inbox? We know that sometimes posts can get missed or some days… Read More »NEW Newsletter! The PeeWee’s Post!

It’s PeeWee’s Birthday on 28th August and we’d love everyone to celebrate this August and have some fundraising fun. Why not hold a PeeWee Picnic?… Read More »PEEWEE’S BIRTHDAY!! 28th August!

There is a lot of exciting PWS research going on right now here in the UK at Cambridge University. Dr Lucie Aman has recently completed… Read More »An update from Cambridge University Research! July 2023