An idea for May Awareness Month is to make this a “Global Registry Month.” Whether you’re completely new to the Global PWS Registry or you’re… Read More »Make May a Global Registry month

We’re pleased to share this message from Aardvark Therapeutics, who have reaffirmed their deep commitment to the Prader‑Willi syndrome (PWS) community. FPWR UK remains in… Read More »Message from Aardvark Therapeutics

We know that many families across our community are feeling frustrated, disappointed, and even angry following the recent news regarding Vykat XR and the withdrawal of the European application … Read More »Update on Vykat XR and what this means for the PWS community 

Make a Difference in Minutes: Fundraise for FPWR UK Through Facebook & Instagram Supporting Prader-Willi syndrome (PWS) research has never been easier. Facebook and Instagram… Read More »Social Media Fundraising

What if we could zoom inside our DNA and see how tiny genetic changes shape the way the brain develops and functions? That’s exactly what Dr… Read More »Mapping the Secrets of Chromosome 15

A new preprint suggests that some of the earliest signs of Prader–Willi syndrome (PWS) may actually begin before a baby is born — not just in the brain… Read More »New Research Focuses on Prader–Willi Syndrome Signs Before Birth