Almond Pubs’ annual One Small Step event has become a highlight of the year for FPWR UK and an amazing fundraising and community event. Now… Read More »It’s time for One Small Step with Almond Pubs

Many families and individuals with Prader-Willi syndrome (PWS) notice that temperature doesn’t always “behave” in the way you might expect. Someone with PWS might become… Read More »Temperature Control and PWS: What Does the Research Say?

Living with Prader–Willi syndrome (PWS) creates a number of challenges that affects nearly every part of daily life, from constant hunger to anxiety, learning difficulties,… Read More »Unlocking BDNF via a nasal spray

An idea for May Awareness Month is to make this a “Global Registry Month.” Whether you’re completely new to the Global PWS Registry or you’re… Read More »Make May a Global Registry month

We’re pleased to share this message from Aardvark Therapeutics, who have reaffirmed their deep commitment to the Prader‑Willi syndrome (PWS) community. FPWR UK remains in… Read More »Message from Aardvark Therapeutics

We know that many families across our community are feeling frustrated, disappointed, and even angry following the recent news regarding Vykat XR and the withdrawal of the European application … Read More »Update on Vykat XR and what this means for the PWS community