Sleep challenges are something many families living with Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS) know all too well. Whether it’s disrupted nights, early waking, difficulty settling… Read More »Understanding Sleep in Prader-Willi Syndrome (PWS) and Schaaf-Yang Syndrome (SYS) 

Please note this research (Efficacy and safety of semaglutide for obesity and hyperphagia in adults with Prader-Willi syndrome | medRxiv) is currently a preprint, which means it has not… Read More »Can Semaglutide help with PWS

We are delighted to announce the first of three fantastic research projects that FPWR UK are investing in this year. This first project, which we… Read More »Can CCK help us understand hunger and fullness in PWS? 

Almond Pubs’ annual One Small Step event has become a highlight of the year for FPWR UK and an amazing fundraising and community event. Now… Read More »It’s time for One Small Step with Almond Pubs

Many families and individuals with Prader-Willi syndrome (PWS) notice that temperature doesn’t always “behave” in the way you might expect. Someone with PWS might become… Read More »Temperature Control and PWS: What Does the Research Say?

Living with Prader–Willi syndrome (PWS) creates a number of challenges that affects nearly every part of daily life, from constant hunger to anxiety, learning difficulties,… Read More »Unlocking BDNF via a nasal spray