The Foundation for Prader Willi Research (UK) is a charity dedicated to raising money to fund vital research into Prader Willi Syndrome, a lifelong and… Read More »Volunteer Treasurer Wanted!

In this third blog I will write about some of the challenges I can expect to face in Alaska. I will also touch on some… Read More »Tough…but Worthwhile!

Wow!! What an incredible awareness month we have had! We have received so much support from the amazing PWS community this May – we’ve have… Read More »AWARENESS MONTH 2023!

You may be aware that there are 2 PWS charities in the UK. PWSA UK and FPWR UK. Why is this the case?  FPWR UK… Read More »Going Orange together for Prader Willi Syndrome

In this second blog I will discuss equipment for my remote expedition to Alaska in July and a little more about PWS which is the… Read More »Sheejek River – Equipment and Medicine for a Remote Expedition

This July I will be embarking on an expedition together with my father to complete an approximately 300 mile stretch of the Sheenjek river in… Read More »Alaskan Canoe Expedition and Raising Awareness for PWS