Could you be a volunteer for FPWR UK?
This is Lin’s story who has volunteered for FPWR UK for 6 years, in this blog she has shared how volunteering has how it helped… Read More »Could you be a volunteer for FPWR UK?
Volunteers Wanted!
What would you like to accomplish in 2023? FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi… Read More »Volunteers Wanted!
A new way to measure PWS-specific anxiousness and distress.
By Marcin Miszkowski PWS comes with a glut of complex and challenging needs that caregivers are all too familiarwith. Surveys in the Global PWS Registry… Read More »A new way to measure PWS-specific anxiousness and distress.
THANK YOU, ANGIE!
This is an appreciation statement for our very own volunteer Angie Saunders – in just a couple of months of working with us she has… Read More »THANK YOU, ANGIE!
Pitolisant eases sleepiness in people with PWS: data
Written by Marcin Miszkowski What’s the news? Trials of the use of Pitolisant to ease excessive daytime sleepiness in people with PWS have shown some… Read More »Pitolisant eases sleepiness in people with PWS: data