This July I will be embarking on an expedition together with my father to complete an approximately 300 mile stretch of the Sheenjek river in… Read More »Alaskan Canoe Expedition and Raising Awareness for PWS

LETS GO ORANGE FOR PWS AWARENESS THIS MAY! If you would like to make an order – simply email: info@fpwr.org.uk or send us a message… Read More »PWS AWARENESS MONTH MERCHANDISE NOW ON SALE!!

FPWR UK is the only UK charity which is devoted to research into Prader Willi Syndrome. We have small overheads but otherwise all our proceeds… Read More »Blogger Wanted!

Written by Marcin Miszkowski What’s the news? A recent Phase 3 trial has shown that liraglutide can help ease excessive hunger alongside a diet and… Read More »Liraglutide helps control excessive hunger but has no impact on weight

After 6 years of volunteering for FPWR UK, a board member and an incredible support for FPWR UK Lin has decided to step down as… Read More »Wishing a fond farewell to Lin Edwards!

By Marcin Miszkowski Now we have knocked on the door and entered 2023, this is an opportunity to look back and reflect on some of… Read More »A Review of Research into PWS in 2022