Soleno Theraputics the company behind DCCR, recently published positive results from their randomised withdrawal phase of an extended treatment of DCCR. In the study, 77… Read More »FPWR UK Statement on DCCR

The recent International Prader Willi Syndrome Organisation (IPWSO) research presentation was a very positive experience. For those that were unable to attend or have yet… Read More »International Prader Willi Syndrome Organisation (IPWSO) Research Update

I’m pleased to say we completed our expedition to canoe the Sheenjek river on 23rd July which in the end took 13 days, during 12… Read More »Completed Alaskan Canoe Expedition and funds raised for PWS Research

The Foundation for Prader Willi Research (UK) is a charity dedicated to raising money to fund vital research into Prader Willi Syndrome, a lifelong and… Read More »Volunteer Treasurer Wanted!

In this third blog I will write about some of the challenges I can expect to face in Alaska. I will also touch on some… Read More »Tough…but Worthwhile!

In this second blog I will discuss equipment for my remote expedition to Alaska in July and a little more about PWS which is the… Read More »Sheejek River – Equipment and Medicine for a Remote Expedition