FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi Syndrome (PWS) through the advancement of research and… Read More »Volunteers wanted!

Thanks to everyone who contributed to our post on social media which asked ‘how people feel about research’. It’s great to hear everyone’s perspective on… Read More »Research – how do we feel about it?

By Marcin Miszkowski 2023 has been a significant year in the development of treatments to help manage some of  the symptoms of Prader-Willi Syndrome. In… Read More »PWS Research Summary 2023

Soleno Theraputics the company behind DCCR, recently published positive results from their randomised withdrawal phase of an extended treatment of DCCR. In the study, 77… Read More »FPWR UK Statement on DCCR

The recent International Prader Willi Syndrome Organisation (IPWSO) research presentation was a very positive experience. For those that were unable to attend or have yet… Read More »International Prader Willi Syndrome Organisation (IPWSO) Research Update

I’m pleased to say we completed our expedition to canoe the Sheenjek river on 23rd July which in the end took 13 days, during 12… Read More »Completed Alaskan Canoe Expedition and funds raised for PWS Research