My Hopes for the Future
Written by Emily Gorton, mum to Wolfe When Wolfe was born in 2016, little had changed in the way Prader Willi Syndrome was managed since… Read More »My Hopes for the Future
Why Research?
By Catherine Shaw, Chair of FPWR UK There are lots of ways to support people with Prader-Willi, so why did I choose research? Well the… Read More »Why Research?
Hindsight is a Wonderful thing!
By Lin Edwards, FPWR UK board member and Grandparent to William Seven year ago, our grandson William was 3 months old, and we were struggling… Read More »Hindsight is a Wonderful thing!
Good News and Bad News
In recent days we have seen the highs and lows of research and our community’s mission to ease the and eliminate the adverse challenges of… Read More »Good News and Bad News
Why we do it
This Blog was written by Catherine Shaw, Chair of FPWR UK When you get a Prader-Willi diagnosis, you can feel so alone, such a rare… Read More »Why we do it
The challenge of being ‘Rare’
We live in an exciting time when new treatments for PWS are tantalisingly close. New insights pave the way for future treatments and new knowledge… Read More »The challenge of being ‘Rare’