Do you want to make a difference? Administrator Location Home Based Hours 10 hours per week with a view to increasing hours Days worked by… Read More »Job Opportunity! We are looking for a part time Administrator…
By Catherine Shaw It is with great sadness that we are bidding farewell, to one of our valued board members, Louise Valsinger. Louise joined the… Read More »‘See you Later’ Louise
By Lin Edwards Research gives us hope for a better future for our loved ones with PWS. But research is expensive. Most people have heard… Read More »Why we need your help
I’m Catherine Shaw, Co-founder and Chair person of FPWR UK. I just thought I would introduce myself and share my story. I am a Mum… Read More »Catherine’s Story
This month our Board held a planning meeting to work out what we wanted to achieve for the forthcoming year. The past couple of years… Read More »Our Goals for 2022
By David Jack With New Year rapidly approaching now is a good opportunity to reflect on 2021 and where we are on our journey to… Read More »A look back over progress in 2021