Karla’s Story
My experience in a nutshell… Bethanie was born via elective section at 37 weeks due to me having gestational diabetes. She weighed just 6lb2oz, even… Read More »Karla’s Story
Fundraising for a Better Future
Joshua – by Emma, Joshua’s mum Joshua was 2 weeks old when he was diagnosed with Prader-Willi Syndrome. He suffers significantly from hypotonia. Hypotonia is… Read More »Fundraising for a Better Future
The world is their Oyster.
Where do I begin 20 years of absolute joy and pride? This floppy little scrap of a boy entered the world weighing 3lbs 9oz’s. Wow… Read More »The world is their Oyster.
PWS, Cystic Fibrosis and Research
If ever you needed to be convinced about what knowledge and research can achieve for a condition, you can look at how the world has… Read More »PWS, Cystic Fibrosis and Research
Why Awareness Matters
Prader-Willi Awareness month is in full swing, but why is this important? Prader-Willi affects 1 in 22,000 births, meaning it is pretty rare! Before my… Read More »Why Awareness Matters
George, Me and Move it May
Written by Amy Gowman-Dunn – mum to George Hi, I’m mum to George aged 18 months, he was born premature with multiple complex needs and… Read More »George, Me and Move it May