Why Awareness Matters
Prader-Willi Awareness month is in full swing, but why is this important? Prader-Willi affects 1 in 22,000 births, meaning it is pretty rare! Before my… Read More »Why Awareness Matters
George, Me and Move it May
Written by Amy Gowman-Dunn – mum to George Hi, I’m mum to George aged 18 months, he was born premature with multiple complex needs and… Read More »George, Me and Move it May
The silver lining of Covid-19 for PWS
I’m sure none of us imagined that we could ever spend over a year in lockdown and the world would virtually grind to a halt… Read More »The silver lining of Covid-19 for PWS
DCCR Townhall Meeting
Hyperphagia is surely the most infamous of the PWS symptoms. Back in those dark early days when we received Robyn’s diagnosis I couldn’t focus on… Read More »DCCR Townhall Meeting
Prader Willi Awareness Month
Save the Date 28th May 21 Go Orange on Friday 28th May 2021 and raise awareness of Prader Willi Syndrome. Wear something orange and share… Read More »Prader Willi Awareness Month
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