This week our sister organisation FPWR in the USA are running their fantastic conference. There is so much to be optimistic about with new treatments… Read More »Nicola explains why fundraising is vital

We are in an exciting and unprecedented period of PWS research. DCCR and Carbetocin (LV-101) have shown promising results following phase 3 studies. Other interesting… Read More »What is a Clinical Trial?

My support for FPWR-UK started 8 years ago when I was asked to take part in a One Small Step Pub walk to support a… Read More »The Brownie’s Fundraising Event

This year FPWRUK are helping fund a project looking at ‘How is the Epitranscriptomic Signature of Active AGRP Neurons disrupted in PWS?’.  This project is… Read More »Funded Research for 2020 by FPWR UK

Saturday 21st August dawned grey and overcast in Stockport- we’d all managed to bunk down in my son,  Chris’ new house, so didn’t have to… Read More »One Small Step Walk Stockport 2021

Hi I’m Rosie, As you can see I was absolutely delighted with my school house points!