We’ve recently seen questions and concerns on social media about the status of VYKAT® XR (diazoxide choline, previously known as DCCR) in Europe. We wanted… Read More »Understanding the Current Status of VYKAT® XR in Europe 

We were delighted when parent and GP Dr Catriona Moore offered to visit University of Bristol recently to see first-hand how research funding is being… Read More »PWS Research Visit

At FPWR UK, we are committed to supporting research that has the potential to change lives. That’s why we are delighted to announce that FPWR UK is investing £16,000 in an… Read More »Targeting the Root Cause of Prader-Willi Syndrome 

Sleep challenges are something many families living with Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS) know all too well. Whether it’s disrupted nights, early waking, difficulty settling… Read More »Understanding Sleep in Prader-Willi Syndrome (PWS) and Schaaf-Yang Syndrome (SYS) 

Please note this research (Efficacy and safety of semaglutide for obesity and hyperphagia in adults with Prader-Willi syndrome | medRxiv) is currently a preprint, which means it has not… Read More »Can Semaglutide help with PWS

We are delighted to announce the first of three fantastic research projects that FPWR UK are investing in this year. This first project, which we… Read More »Can CCK help us understand hunger and fullness in PWS?