Fundraising for a Better Future
Joshua – by Emma, Joshua’s mum Joshua was 2 weeks old when he was diagnosed with Prader-Willi Syndrome. He suffers significantly from hypotonia. Hypotonia is… Read More »Fundraising for a Better Future
The world is their Oyster.
Where do I begin 20 years of absolute joy and pride? This floppy little scrap of a boy entered the world weighing 3lbs 9oz’s. Wow… Read More »The world is their Oyster.
Why Awareness Matters
Prader-Willi Awareness month is in full swing, but why is this important? Prader-Willi affects 1 in 22,000 births, meaning it is pretty rare! Before my… Read More »Why Awareness Matters
George, Me and Move it May
Written by Amy Gowman-Dunn – mum to George Hi, I’m mum to George aged 18 months, he was born premature with multiple complex needs and… Read More »George, Me and Move it May
The silver lining of Covid-19 for PWS
I’m sure none of us imagined that we could ever spend over a year in lockdown and the world would virtually grind to a halt… Read More »The silver lining of Covid-19 for PWS
DCCR Townhall Meeting
Hyperphagia is surely the most infamous of the PWS symptoms. Back in those dark early days when we received Robyn’s diagnosis I couldn’t focus on… Read More »DCCR Townhall Meeting