Catherine’s Story
I’m Catherine Shaw, Co-founder and Chair person of FPWR UK. I just thought I would introduce myself and share my story. I am a Mum… Read More »Catherine’s Story
Our Goals for 2022
This month our Board held a planning meeting to work out what we wanted to achieve for the forthcoming year. The past couple of years… Read More »Our Goals for 2022
A look back over progress in 2021
By David Jack With New Year rapidly approaching now is a good opportunity to reflect on 2021 and where we are on our journey to… Read More »A look back over progress in 2021
Fundraising in 2021 – A Challenging Year
By Lin Edwards Covid has affected our lives for almost 2 years now – and fundraising has been badly affected. 2020 would have been our… Read More »Fundraising in 2021 – A Challenging Year
My Hopes for the Future
Written by Emily Gorton, mum to Wolfe When Wolfe was born in 2016, little had changed in the way Prader Willi Syndrome was managed since… Read More »My Hopes for the Future
Why Research?
By Catherine Shaw, Chair of FPWR UK There are lots of ways to support people with Prader-Willi, so why did I choose research? Well the… Read More »Why Research?