We’re shining the spotlight on our incredible volunteer, Clare Black, whose dedication over the past two years has helped raise vital funds for Prader-Willi Syndrome… Read More »Yeehaw for Research!

On Wednesday 14th May 2025 we took Prader-Willi Syndrome to Parliament! What an incredible experience it was sharing the realities of PWS with policymakers and… Read More »PWS at Parliament – A message from our Chairperson, Catherine Shaw

Soleno Therapeutics, the pharmaceutical company behind the newly FDA-approved hyperphagia treatment, VYKAT XR, is conducting a groundbreaking ‘Burden of Illness Study.’ This study aims to… Read More »Soleno’s Study to show the Impact of PWS on Patients, Caregivers and the Healthcare System

On Wednesday, 14th May, we are delighted to announce that The Rt Hon. the Lord Naseby PC will be hosting an awareness-raising event for policymakers… Read More »PWS Stronger Together and The House of Lords!!

Are you passionate about making a difference? Do you have a little time and a lot of enthusiasm? Then we’d love to hear from you!… Read More »Volunteer with FPWR UK – Make a Difference from Home!

The FDA has approved DCCR (Diazoxide Choline Controlled-Release) for the treatment of hyperphagia in individuals with Prader-Willi Syndrome (PWS)! This approval is a huge leap… Read More »BREAKING NEWS! 🥳