Written by Marcin Miszkowski What’s the news? Trials of the use of Pitolisant to ease excessive daytime sleepiness in people with PWS have shown some… Read More »Pitolisant eases sleepiness in people with PWS: data

As we have said multiple times in the past, we have such a huge appreciation to our fundraisers and donations that we receive, our chair… Read More »FPWR UK annual expenditure chart 2021/2022

Here is a shout out to just some of our amazing fundraisers who have very kindly donated to FPWRUK this year! You are truly an… Read More »Thank you to our fantastic fundraisers!

We have decided this year to help bring in the festive season by hosting a silent auction – We have been able to get our… Read More »Our First Ever Silent Auction –

The Foundation of Prader – Willi Research are so pleased to introduce our new volunteer Marcin, he is a Daddy to a beautiful little girl… Read More »Warmest welcome to our new volunteer!! Marcin! 🙂

You may have seen posts or articles about VNS, but what exactly is it?  VNS stands for Vagus Nerve Stimulation, and it is an exciting, potential… Read More »What is VNS?