Wishing a fond farewell to Lin Edwards!
After 6 years of volunteering for FPWR UK, a board member and an incredible support for FPWR UK Lin has decided to step down as… Read More »Wishing a fond farewell to Lin Edwards!
A Review of Research into PWS in 2022
By Marcin Miszkowski Now we have knocked on the door and entered 2023, this is an opportunity to look back and reflect on some of… Read More »A Review of Research into PWS in 2022
Could you be a volunteer for FPWR UK?
This is Lin’s story who has volunteered for FPWR UK for 6 years, in this blog she has shared how volunteering has how it helped… Read More »Could you be a volunteer for FPWR UK?
Volunteers Wanted!
What would you like to accomplish in 2023? FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi… Read More »Volunteers Wanted!
A new way to measure PWS-specific anxiousness and distress.
By Marcin Miszkowski PWS comes with a glut of complex and challenging needs that caregivers are all too familiarwith. Surveys in the Global PWS Registry… Read More »A new way to measure PWS-specific anxiousness and distress.
THANK YOU, ANGIE!
This is an appreciation statement for our very own volunteer Angie Saunders – in just a couple of months of working with us she has… Read More »THANK YOU, ANGIE!