We loved doing our Online Auction last year and managed to raise £1000.  We’re bringing the Auction back this year but with even more items… Read More »2023 Auction! … Coming soon!

Soleno Theraputics the company behind DCCR, recently published positive results from their randomised withdrawal phase of an extended treatment of DCCR. In the study, 77… Read More »FPWR UK Statement on DCCR

In our second FPWR UK Full Story submission we hear of how the behavioural side of PWS affects W, and strategies that help. It’s really… Read More »Our FPWR UK Full Story – Entry 2

The recent International Prader Willi Syndrome Organisation (IPWSO) research presentation was a very positive experience. For those that were unable to attend or have yet… Read More »International Prader Willi Syndrome Organisation (IPWSO) Research Update

In our first FPWR UK Full Story submission we have Isaac’s mum Emma discussing their journey with the different behaviour symptoms PWS can throw at you, strategies they… Read More »Our FPWR UK Full Story – Entry 1

I’m pleased to say we completed our expedition to canoe the Sheenjek river on 23rd July which in the end took 13 days, during 12… Read More »Completed Alaskan Canoe Expedition and funds raised for PWS Research