My support for FPWR-UK started 8 years ago when I was asked to take part in a One Small Step Pub walk to support a… Read More »The Brownie’s Fundraising Event

This year FPWRUK are helping fund a project looking at ‘How is the Epitranscriptomic Signature of Active AGRP Neurons disrupted in PWS?’.  This project is… Read More »Funded Research for 2020 by FPWR UK

Saturday 21st August dawned grey and overcast in Stockport- we’d all managed to bunk down in my son,  Chris’ new house, so didn’t have to… Read More »One Small Step Walk Stockport 2021

Hi I’m Rosie, As you can see I was absolutely delighted with my school house points!

My experience in a nutshell… Bethanie was born via elective section at 37 weeks due to me having gestational diabetes.  She weighed just 6lb2oz, even… Read More »Karla’s Story

Joshua – by Emma, Joshua’s mum Joshua was 2 weeks old when he was diagnosed with Prader-Willi Syndrome.  He suffers significantly from hypotonia. Hypotonia is… Read More »Fundraising for a Better Future