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“Research gives my daughter her best hope for a happy and independent future. “

We can and
Together we will

Our mission is to eliminate the challenges of Prader-Willi Syndrome (PWS) through research and therapeutic development.

How We Help


Research is key!

FPWR UK raises money for the sole purpose of research. Research will help us to improve the lives of individuals with PWS

How Everyone Helps



There are many ways to get involved:

  • One Small Step Walk
  • Donate
  • Run
  • Much more

How You Help

Who We Are

Global Registry

By participating, individuals and families of those with PWS become part of the research team, helping uncover trends which inform new directions in therapies and treatment.

Meet PeeWee

PeeWee is our FPWR UK mascot and supports our One Small Step Walks and other fundraising events. He travels all over the world to make new research discoveries, raise money to invest in research and have fun!

Help PeeWee make new research discoveries by Donating Today or Fundraising for FPWR UK


Mission Statement

To eliminate the challenges of Prader-Willi Syndrome (PWS) through the advancement of research.

Research Progress

Established the PWS Clinical Trials Consortium
Launched the Global PWS Registry
Funded Screening of 10,000 molecules in search of drug candidates for generic therapy
FPWR Co-funded Phase 1 study of Diazoxide Choline (DCCR)