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“Research gives us hope that we can create a bright future for our daughter “

We can and
Together we will

Our mission is to eliminate the challenges of Prader-Willi Syndrome (PWS) through research and therapeutic development.

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How We Help

Research

Research is key!

FPWR UK raises money for the sole purpose of research. Research will help us to improve the lives of individuals with PWS

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How Everyone Helps

Fundraising

Fundraise!

There are many ways to get involved:

  • One Small Step Walk
  • Donate
  • Run
  • Much more
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How You Help

Who We Are

Global Registry

By participating, individuals and families of those with PWS become part of the research team, helping uncover trends which inform new directions in therapies and treatment.

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Meet PeeWee

PeeWee is our FPWR UK mascot and supports our One Small Step Walks and other fundraising events. He travels all over the world to make new research discoveries, raise money to invest in research and have fun!

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Help PeeWee make new research discoveries by Donating Today or Fundraising for FPWR UK

PeeWee

Mission Statement

To eliminate the challenges of Prader-Willi Syndrome (PWS) through the advancement of research.

pee wee and small steps
fundraising peewee
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pee wee and crowd
Pee Wee

Research Progress

2017
July 14
Awarded Drs Chamberlain and Carmichael pilot funding in PWS genetics research
2015
June 14
Established the PWS Clinical Trials Consortium
January 14
Launched the Global PWS Registry
2014
July 14
Funded Screening of 10,000 molecules in search of drug candidates for generic therapy
January 14
FPWR Co-funded Phase 1 study of Diazoxide Choline (DCCR)