Prader-Willi Syndrome (PWS) affects many aspects of a person’s life, including their physical health and development. One of the challenges faced by adults with PWS… Read More »Can Growth Hormone slow down premature ageing in adults with PWS?
Prader-Willi Syndrome (PWS) and Congenital Myasthenic Syndrome-22 (CMS22) are two rare genetic disorders that, at first glance, might seem unrelated. However, recent research has uncovered… Read More »Exploring the Connection Between PWS and CMS22
What is Schaaf-Yang Syndrome?Schaaf-Yang Syndrome (or SYS) was first described by Dr Christian Schaaf in 2013. It is caused by a mutation or deletion in… Read More »Schaaf Yang Syndrome
FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi Syndrome (PWS) through the advancement of research and… Read More »Volunteers wanted!
MindSight Research are looking to invite people to participate in a research study which is focused on an injection device to administer medication to people… Read More »PWS Stronger Together have been informed of a new research opportunity!!
This year, FPWR UK and PWSA UK (Prader Willi Syndrome Association) decided upon a one of a kind challenge for PWS Awareness Month! We have… Read More »MOVE IT MAY SUCCESS!!