We’re thrilled to announce that FPWR UK is fully funding a groundbreaking research project in 2025 led by European researcher Dr. Hervé Moine.  Dr Moine… Read More »DGKk

Sleep is essential for energy, focus, and overall well-being, but for individuals with Prader-Willi Syndrome (PWS), sleep can be a major challenge. Many people with… Read More »Unlocking Better Sleep for People with PWS

Scientists believe that in Prader-Willi Syndrome (PWS), one part of the brain — the hypothalamus — doesn’t work quite as it should. This tiny but… Read More »Building a Brain in a Dish: How Scientists Are Exploring the Root of PWS Symptoms

To better understand how Prader-Willi Syndrome (PWS) affects mood, health, and happiness, over 500 parents from the Global PWS Registry participated in a special study.… Read More »How do Individuals with PWS view their Health and Happiness? A new report highlights urgent need for better care and more treatments 

As PWS Awareness Month draws to a close, we want to take a moment to say an enormous thank you to everyone who helped make… Read More »PWS Awareness Month 2025: A Huge Thank You for an Incredible Month!

We’re shining the spotlight on our incredible volunteer, Clare Black, whose dedication over the past two years has helped raise vital funds for Prader-Willi Syndrome… Read More »Yeehaw for Research!