Hi, I am Shannon Cohead I am 29 with 2 children and another on the way – 2 and a half years ago, my Son Tommy was born and when he was 10 days old he was diagnosed with Prader-Willi Syndrome. Since this time I have gone from viewing this condition with a feeling of sadness to one of pure admiration – the strength and resilience of Tommy shown me just how incredible these children are! Since Tommy’s diagnoses I have followed the updates on the research performed by the Foundation of Prader – Willi Research with avid interest and now have the privilege to work for such a charity.
Before children I was a college lecturer, since having children I have worked as a data administrator for a software company and since Tommy, I have wanted to help other families impacted by this condition who may have been like us and had never heard of it before, I have even started writing a book of Tommy’s story to give future parents/guardians an idea of what’s to come, even though their own story may not necessarily be the same.
I am excited to see where future research takes Tommy as well as every other PWS person in the UK! And very excited to now be a part of the team 😊