We loved doing our Online Auction last year and managed to raise £1000.  We’re bringing the Auction back this year but with even more items… Read More »2023 Auction! … Coming soon!

In our second FPWR UK Full Story submission we hear of how the behavioural side of PWS affects W, and strategies that help. It’s really… Read More »Our FPWR UK Full Story – Entry 2

In our first FPWR UK Full Story submission we have Isaac’s mum Emma discussing their journey with the different behaviour symptoms PWS can throw at you, strategies they… Read More »Our FPWR UK Full Story – Entry 1

Would you like to receive FPWR UK news and events straight to your inbox? We know that sometimes posts can get missed or some days… Read More »NEW Newsletter! The PeeWee’s Post!

It’s PeeWee’s Birthday on 28th August and we’d love everyone to celebrate this August and have some fundraising fun. Why not hold a PeeWee Picnic?… Read More »PEEWEE’S BIRTHDAY!! 28th August!

There is a lot of exciting PWS research going on right now here in the UK at Cambridge University. Dr Lucie Aman has recently completed… Read More »An update from Cambridge University Research! July 2023