As PWS Awareness Month draws to a close, we want to take a moment to say an enormous thank you to everyone who helped make… Read More »PWS Awareness Month 2025: A Huge Thank You for an Incredible Month!
We’re shining the spotlight on our incredible volunteer, Clare Black, whose dedication over the past two years has helped raise vital funds for Prader-Willi Syndrome… Read More »Yeehaw for Research!
On Wednesday 14th May 2025 we took Prader-Willi Syndrome to Parliament! What an incredible experience it was sharing the realities of PWS with policymakers and… Read More »PWS at Parliament – A message from our Chairperson, Catherine Shaw
Soleno Therapeutics, the pharmaceutical company behind the newly FDA-approved hyperphagia treatment, VYKAT XR, is conducting a groundbreaking ‘Burden of Illness Study.’ This study aims to… Read More »Soleno’s Study to show the Impact of PWS on Patients, Caregivers and the Healthcare System
On Wednesday, 14th May, we are delighted to announce that The Rt Hon. the Lord Naseby PC will be hosting an awareness-raising event for policymakers… Read More »PWS Stronger Together and The House of Lords!!
The FDA has approved DCCR (Diazoxide Choline Controlled-Release) for the treatment of hyperphagia in individuals with Prader-Willi Syndrome (PWS)! This approval is a huge leap… Read More »BREAKING NEWS! 🥳