Many of you will be aware that the 2021 conference recently finished and as well as giving us lots of useful information on important concerns… Read More »FPWR UK – part of a Global effort!

This week our sister organisation FPWR in the USA are running their fantastic conference. There is so much to be optimistic about with new treatments… Read More »Nicola explains why fundraising is vital

We are in an exciting and unprecedented period of PWS research. DCCR and Carbetocin (LV-101) have shown promising results following phase 3 studies. Other interesting… Read More »What is a Clinical Trial?

Hyperphagia is surely the most infamous of the PWS symptoms. Back in those dark early days when we received Robyn’s diagnosis I couldn’t focus on… Read More »DCCR Townhall Meeting