Volunteers Wanted!
What would you like to accomplish in 2023? FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi… Read More »Volunteers Wanted!
A new way to measure PWS-specific anxiousness and distress.
By Marcin Miszkowski PWS comes with a glut of complex and challenging needs that caregivers are all too familiarwith. Surveys in the Global PWS Registry… Read More »A new way to measure PWS-specific anxiousness and distress.
Welcome to the Team Caz!
We are delighted to welcome Caz Merrett who joins us to help manage our stores. Caz, from Bradford, brings a wealth of fantastic skills and… Read More »Welcome to the Team Caz!
Job Opportunity! We are looking for a part time Administrator…
Do you want to make a difference? Administrator Location Home Based Hours 10 hours per week with a view to increasing hours Days worked by… Read More »Job Opportunity! We are looking for a part time Administrator…
‘See you Later’ Louise
By Catherine Shaw It is with great sadness that we are bidding farewell, to one of our valued board members, Louise Valsinger. Louise joined the… Read More »‘See you Later’ Louise
Why we need your help
By Lin Edwards Research gives us hope for a better future for our loved ones with PWS. But research is expensive. Most people have heard… Read More »Why we need your help