Are you passionate about making a difference? Do you have a little time and a lot of enthusiasm? Then we’d love to hear from you!… Read More »Volunteer with FPWR UK – Make a Difference from Home!

FPWR UK is a volunteer led charity whose mission is to eliminate the challenges of Prader Willi Syndrome (PWS) through the advancement of research and… Read More »Volunteers wanted!

Thanks to everyone who contributed to our post on social media which asked ‘how people feel about research’. It’s great to hear everyone’s perspective on… Read More »Research – how do we feel about it?

By Marcin Miszkowski 2023 has been a significant year in the development of treatments to help manage some of  the symptoms of Prader-Willi Syndrome. In… Read More »PWS Research Summary 2023

Soleno Theraputics the company behind DCCR, recently published positive results from their randomised withdrawal phase of an extended treatment of DCCR. In the study, 77… Read More »FPWR UK Statement on DCCR

The recent International Prader Willi Syndrome Organisation (IPWSO) research presentation was a very positive experience. For those that were unable to attend or have yet… Read More »International Prader Willi Syndrome Organisation (IPWSO) Research Update