We are thrilled to announce that Ella Toone has officially joined us as our Charity Patron — a moment of immense pride and excitement for… Read More »FPWR UK welcomes Ella Toone as our Charity Patron

When we think about the brain, we often picture a network of nerve cells (neurons) that send signals throughout the body, allowing us to move,… Read More »Do Blood Vessels In The Brain Influence PWS More Than We Think?

Life with Prader-Willi syndrome (PWS), is a constant balancing act. Between managing food security, navigating emotional ups and downs, and advocating for medical support, the… Read More »Sepranolone: A New Hope for Compulsive Behaviour in PWS 

Imagine if a simple blood test could help predict how severely someone with Prader-Willi Syndrome (PWS) might be affected—whether they’ll struggle more with learning or… Read More »Can a blood sample predict PWS severity?

If you’re parenting a child with Prader-Willi Syndrome (PWS), you already know how complex and challenging the journey can be. A new study published in… Read More »Impact of Prader-Willi Syndrome- Soleno’s Review of Literature published

Families of children and adults with Prader-Willi Syndrome (PWS) know that challenges extend far beyond food-related behaviours. Many individuals with PWS also experience aggression, hyperactivity,… Read More »GXR trial shows promising results