Life with Prader-Willi syndrome (PWS), is a constant balancing act. Between managing food security, navigating emotional ups and downs, and advocating for medical support, the… Read More »Sepranolone: A New Hope for Compulsive Behaviour in PWS 

Imagine if a simple blood test could help predict how severely someone with Prader-Willi Syndrome (PWS) might be affected—whether they’ll struggle more with learning or… Read More »Can a blood sample predict PWS severity?

If you’re parenting a child with Prader-Willi Syndrome (PWS), you already know how complex and challenging the journey can be. A new study published in… Read More »Impact of Prader-Willi Syndrome- Soleno’s Review of Literature published

Families of children and adults with Prader-Willi Syndrome (PWS) know that challenges extend far beyond food-related behaviours. Many individuals with PWS also experience aggression, hyperactivity,… Read More »GXR trial shows promising results

We’re thrilled to announce that FPWR UK is fully funding a groundbreaking research project in 2025 led by European researcher Dr. Hervé Moine.  Dr Moine… Read More »DGKk

Sleep is essential for energy, focus, and overall well-being, but for individuals with Prader-Willi Syndrome (PWS), sleep can be a major challenge. Many people with… Read More »Unlocking Better Sleep for People with PWS