The Biggest Year Yet for FPWR UK and PWS Research As we close the chapter on 2025, I find myself reflecting on what an extraordinary… Read More »2025 – a message from our Chairperson

Rhythm Pharmaceuticals has shared early results from a Phase 2 study of a drug called setmelanotide in people with Prader-Willi syndrome (PWS). This is an exciting development because it… Read More »Rhythm Pharmaceuticals announce promising early data on their trial of Setmelanotide 

For families living with Prader-Willi syndrome (PWS), the relentless drive to eat is a well-known and daily struggle. A key area of PWS research is… Read More »Boosting Brain Signals to Help Regulate Appetite in PWS 

A personal perspective from Professor Tony Holland We are deeply grateful to Professor Tony Holland for sharing his reflections on over 30 years of research… Read More »30+ years of research into PWS

Following our visit to the University of Cambridge last week, we have been asked to share details of an exciting new study. A research team… Read More »Mitochondria Research Opportunity

The festive season is here – a time for giving, sharing joy, and spreading hope. At FPWR UK, we’re inviting you to make this Christmas… Read More »Give The Gift of Research