If you’re parenting a child with Prader-Willi Syndrome (PWS), you already know how complex and challenging the journey can be. A new study published in… Read More »Impact of Prader-Willi Syndrome- Soleno’s Review of Literature published

Families of children and adults with Prader-Willi Syndrome (PWS) know that challenges extend far beyond food-related behaviours. Many individuals with PWS also experience aggression, hyperactivity,… Read More »GXR trial shows promising results

We’re thrilled to announce that FPWR UK is fully funding a groundbreaking research project in 2025 led by European researcher Dr. Hervé Moine.  Dr Moine… Read More »DGKk

Sleep is essential for energy, focus, and overall well-being, but for individuals with Prader-Willi Syndrome (PWS), sleep can be a major challenge. Many people with… Read More »Unlocking Better Sleep for People with PWS

Scientists believe that in Prader-Willi Syndrome (PWS), one part of the brain — the hypothalamus — doesn’t work quite as it should. This tiny but… Read More »Building a Brain in a Dish: How Scientists Are Exploring the Root of PWS Symptoms

To better understand how Prader-Willi Syndrome (PWS) affects mood, health, and happiness, over 500 parents from the Global PWS Registry participated in a special study.… Read More »How do Individuals with PWS view their Health and Happiness? A new report highlights urgent need for better care and more treatments