Hyperphagia — an overwhelming and constant drive to eat — is one of the most challenging symptoms of Prader-Willi Syndrome (PWS). It can lead to… Read More »TNX2900 Trial to Target Hyperphagia in PWS

In 2018, thanks to the generosity of UK fundraisers, FPWR UK proudly funded a groundbreaking research project titled “Improving Social Functioning in Prader-Willi Syndrome”. Led… Read More »From Research to Real-Life Impact: How the BOSS Programme is Empowering People with PWS

We are thrilled to announce that Ella Toone has officially joined us as our Charity Patron — a moment of immense pride and excitement for… Read More »FPWR UK welcomes Ella Toone as our Charity Patron

When we think about the brain, we often picture a network of nerve cells (neurons) that send signals throughout the body, allowing us to move,… Read More »Do Blood Vessels In The Brain Influence PWS More Than We Think?

Life with Prader-Willi syndrome (PWS), is a constant balancing act. Between managing food security, navigating emotional ups and downs, and advocating for medical support, the… Read More »Sepranolone: A New Hope for Compulsive Behaviour in PWS 

Imagine if a simple blood test could help predict how severely someone with Prader-Willi Syndrome (PWS) might be affected—whether they’ll struggle more with learning or… Read More »Can a blood sample predict PWS severity?