one small step

What we do

FPWR UK organise fund-raising events in the United Kingdom to support the world-wide research into Prader-Willi Syndrome.

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Future Events

See the up and coming fundraising events in the UK and photos and stories from previous events.

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Prader-Willi Syndrome

FPWR UK has a message of hope for families that are touched by PWS. Find out more about PWS and what can be done ...

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one small step

News and Events

Prader-Willi Events will keep you up to date with the up and coming fundraising events in the UK in support of Foundation of Prader-Willi Research (FPWR).

2015 Events

Below is a list of our 2015 events. If you would like to add anything to this list please do let us know.

Land Sailing Trek   January

land sailing

This January, Gareth Davies and Joe Barrs embarked on an epic 2,500 mile land-sailing expedition through South America to raise money for the Foundation for Prader-Willi Research and the Ann Dodgson Foundation. They also attempted to reach the summit of Mt Aconcagua (the highest mountain in the world outside of the Himalayas) but had to turn back due to severe weather. A huge achievement and a huge thank you to both lads. They are still fundraising so if you want to know more or show your support please visit their fundraising page

London Marathon   26 April

land sailing

Andy Pusey and Ruth Slater are taking part in the London Marathon. Inspired by Ruth's nephew, They will be completing the 6 mile route for both Whizz Kids and FPWR UK. If you would like to sponsor Andy and Ruth please visit their Just Giving page at

One Small Step Walk - Stockport   11 July

land sailing

Hosted by Vicki Almond and Liam Williams the Stock port OSS walk is a 12.5 mile walk between the 5 Almond Family Pubs, with refreshments at each! It’s a great day out and last year 130 people turned out including 5 PWS families. For more information please contact

OSS Leeds - Stockport   11 July

land sailing

This year’s Leeds One SMALL Step Walk and fun day will take place at Roundhay Park in Leeds, and will set off at 1.30pm. It will be a 5 km walk within the parks ground, Its a lovely scenic walk taking in the wonderful Roundhay Park lake,the paths are all wheelchair/pushchair friendly, and short cuts are possible for those unable to complete the full distance. If you would like to take part in this walk and help raise funds for FPWR UK please contact us at

OSS London - Date to be confirmed, but this walk will hopefully be taking place in the Autumn. Keep checking back for more information!


FPWR and all the people suffering with Prader-Willi Syndrome rely on all your generous donations. Any donation big or small can help towards finding treatments or even a cure for PWS

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Contact us


PO Box 1356


Registered Charity No: 1141923