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The Life You're Given | Virtual Event Ticket

The Life You’re Given | Virtual Event Ticket

£5.00

Purchase one ticket to our virtual screening of The Life You’re Given, followed by a Q&A with parents and filmmakers Jay Coggeshall and Susan Henoch.

After paying for the costs to run the event, any funds raised by ticket sales will go into the FPWR UK general fundraising pot.

Please read the details below in full before purchasing your ticket to ensure you are fully aware of how the booking and event will run.

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You are invited to FPWR UK’s special virtual film screening of the documentary The Life You’re Given, followed by Q&A session with parents and filmmakers Jay Coggeshall and Susan Henoch.

One ticket will enable you to view our screening on one device (eg, computer/phone). If you have family members or friends who wish to view as well, and they will not be with you on the day, they will need to purchase their own ticket with a separate email address.

 

Showing Information – Please Read Carefully and In Full!!

  • The documentary screening and subsequent Q&A session will be held via Zoom meeting on Sunday 26th May 2024.
  • The meeting room will open at 7.50pm BST and the film will start promptly at 8pm. Please ensure you have joined in plenty of time. The documentary lasts 84 minutes.
  • The Zoom meeting invitation will be emailed on the day of the showing to the email address you use to purchase your ticket. You will be added to a mailing list for the single express purpose of emailing you this invitation – your email address will not be used for any other purpose. Please add info@fpwr.org.uk to your contact list to ensure that you don’t miss the invitation, or check your spam folder!
  • The Q&A session will begin at 9.30pm and will last approximately 30 minutes.
  • Questions may be submitted in advance here, or via the meeting chat box on the night. If your question is very similar to other questions we may combine them into a single question.

 

Documentary Synopsis

Sophie was born with a rare genetic disorder, Prader-Willi syndrome (PWS), which affects roughly one in every 15,000 births. The Life You’re Given sheds light on the human side of this statistical rarity. The documentary offers an intimate portrayal of one family’s journey, spanning 35 years, as they navigate the challenges and unexpected joys of dealing with a little-understood and rarely-seen condition. The filmmakers are Sophie’s parents and feature insights from doctors, psychotherapists, teachers, PWS experts, and group home staff.

At its heart, the documentary addresses not only the global Prader-Willi syndrome community and the broader developmental disability community but also underscores the strength of unconditional love. It encourages us to shift our focus from individual suffering to the act of caring for others. Ultimately, the film concludes with a message of hope triumphing over despair as love perseveres.

 

Further Information

View the documentary trailer on YouTube. You can also check out the website.

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