Prader Willi Awareness Month

  • by

May is Prader Willi Syndrome Awareness month, with GO ORANGE day on the last Friday of the month. The idea of awareness month is to educate the general public on complexities of a syndrome that many have never heard of. Throughout May we encourage people to talk about PWS, use social media platforms to tell their PWS story, share facts about PWS and stress the importance of research – giving hope to all families who live with this condition. With the increased social media activity during May it is a great opportunity to fundraise for FPWR UK. We invite you to join our annual Move It May fundraising campaign, but we will of course support you with any fundraising you wish to undertake. We can also provide leaflets to help you raise awareness amongst your friends and colleagues. For any support please contact us.

Super Market Collections

Rosie singing

Save the Date 28th May 21

Go Orange on Friday 28th May 2021 and raise awareness of Prader Willi Syndrome. Wear something orange and share your stories.

Go Orange is on the last Friday of May, and is one day when people across the globe wear something orange in support of Prader-Willi Syndrome. This can be as an individual, with in a school setting, workplace, gym, club or anywhere. Make sure you have something orange to wear, whether it be one of our fantastic t-shirts, or an orange pair of socks – anything will do.

Send us an email contact for your child’s school or nursery. We will message them with a short video and information to share at school and hopefully support us. That’s all you need to do, we’ll do the rest!

You can support this by buying one of our GO ORANGE T shirts – they are very eye-catching and people will ask!