
Leaving a gift in your will is a deeply personal decision. For many people, it’s a way to reflect what has mattered most to them in life — family, community, and the hope of a better future.
By including a gift to Foundation for Prader‑Willi Research UK (FPWR UK), you can help create lasting change for people living with Prader‑Willi syndrome (PWS) and for the families who love and support them.
Your legacy could help transform lives, not just today, but for generations to come.

Why gifts in wills matter so much
Gifts in wills play a vital role in funding research into Prader‑Willi syndrome. They allow us to plan for the long term, invest in promising scientific projects, and support research that has the potential to change understanding, treatment, and outcomes for people with PWS.
Thanks to the generosity of supporters, FPWR helps fund:
- Ground‑breaking research into the causes, biology and treatment of Prader‑Willi syndrome
- Research projects reviewed by both scientists and parent advocates to ensure scientific and community value
- Innovative approaches aimed at improving quality of life and increasing independence
Legacy gifts often fund some of the most ambitious and impactful research — the kind that can lead to real breakthroughs.
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Your loved ones always come first
Including FPWR UK in your will doesn’t mean taking away from the people closest to you. Many supporters choose to leave a small percentage of their estate after family and friends have been provided for.
Even 1% can make a lasting difference — helping to fund research that could shape the future for people living with PWS.
Every gift, whatever its size, is valued and appreciated.
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How your gift could make an impact
A gift in your will could help:
- Advance understanding of the genetic and neurological aspects of PWS
- Support the development of new treatments and therapies
- Improve long‑term health outcomes and independence
- Offer hope to families navigating life with a rare condition
Your legacy helps ensure that vital research can continue — not just now, but well into the future.
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Ways to leave a gift
Leaving a gift in your will is simple, and there are several options to choose from:
- A share of your estate (a residuary gift)
- A fixed sum of money
- A gift left after your loved ones are provided for
Your solicitor can advise on what works best for your circumstances and include this when writing or updating your will.
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What your solicitor will need
To include FPWR UK in your will, your solicitor will need the following details:
Full name: Foundation for Prader‑Willi Research UK
Charity number: 1141923
Including the correct details helps ensure your wishes are carried out exactly as you intend.
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A conversation, not a commitment
Letting us know about your intentions is entirely optional, but it can help us say thank you and ensure your gift is used in the way you would wish. Any information shared with us is treated with care and respect.
If you’d like to talk confidentially, or simply learn more about how legacy gifts support PWS research, we’re always happy to help.
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Thank you for thinking of the future
A gift in your will is more than a donation — it’s a statement of hope. It says that people living with Prader‑Willi syndrome matter, and that research matters.
By remembering FPWR UK in your will, you are helping to build a future with better understanding, better treatments, and brighter possibilities.
