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“Right now, all we can do is manage PWS as best we can, tirelessly building our knowledge and raising funds for research. There is a cure, and with your help, we can find it!”

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Sign up for our mailing list and make sure you never miss out on any of our news, updates or announcements again!

We currently have one regular mailout – PeeWee’s Post!

PeeWee’s Post

Peewee’s Post is the name of our e-newsletter. It is jam-packed full of interesting news, stories and information that are sure to impress and intrigue you! PeeWee’s Post is delivered to your inbox a few times a year.

Inside PeeWee’s Post:

  • current treatment trials and studies – latest news and updates
  • celebrating our fabulous FPWR UK fundraisers
  • upcoming events, both virtual and in person
  • opportunities to take part in research and surveys
  • how to volunteer or fundraise for FPWR UK
  • where FPWR UK send their funding
  • and much more!!

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A note about GDPR

We abide by GDPR and will not use your email address for anything other than the contact outlined above.